Three years ago today, I was waking up from what I hope is
my final surgery related to breast cancer. Four surgeries in 10 months were
physically and emotionally exhausting but the combinations of those surgeries
were successful in not only making me cancer free but also in reconstructing much
of what cancer stole from me.
My emotional wholeness is tied tightly to my physical
wholeness and the serial process of mastectomy and reconstructive surgery would
not have been possible without policy [the Women's Health and Cancer Rights Act(WHCRA)] guaranteeing my right to reconstruction after breast cancer. And the
entire cancer fiasco would not have been financially feasible without a very
comprehensive and robust healthcare plan.
My first two surgeries were covered under my work provided
health insurance. I paid less than $1000 out-of-pocket for costs related to
cancer in 2013. In November of 2013, I went on my husband’s plan and was
therefore “double covered” for my second mastectomy and the start of my
bilateral reconstruction with out-of-pocket costs totaling just under $500 for
the month of January 2014.
On February 13th, 2014, I officially separated
from my employer and the affiliated healthcare plan. My entire family became
reliant on my husband’s employer-provided insurance. We were back to $20 copays
and 30% of cost for diagnostic tests. More money but still affordable. A series
of unfortunate events, which involved a leaking expander, pushed my exchange
surgery up several months. And so, on March 24th, 2014, I went under
the knife one last time to exchange my temporary expanders for what I hope will
be permanent implants.*
This final and unplanned (after all, no one predicted a
leaky expander!) procedure cost my family $8,000. Yep, even fully insured,
there went eight thousand dollars out-of-pocket from my family’s savings with only
two weeks notice. This unbudgeted cost did not bankrupt us but we felt it deeply
and heard the sucking sound from our kids’ college savings account.
For anyone struggling with the math, this out-of-pocket
maximum is financially far beyond “skipping the latest iPhone.” For anyone
struggling with reality, this is a financial drop in the bucket compared to the
costs of long term chemotherapy or chronic illness management.
Health is a fundamental pillar of our communities. And, in
order to preserve health in times of wellness and seek health in times of
illness, we need healthcare. It is my belief that healthcare should be
accessible to all and affordable for all. Reducing premiums by reducing
essential health benefit provisions defeats the purpose of health insurance. For
those unfamiliar with ‘essential benefits’ here is a rundown:
- Preventive Care
- Outpatient Care
- Emergency Room Care
- Inpatient (hospital) Care
- Pregnancy, maternity and newborn care
- Pediatric Care
- Mental Health & Substance Abuse Disorder Services
- Prescription Drug Coverage
- Rehabilitative services & habilitative services.
- Lab tests
The recurring argument against essential benefits is the
obvious “not everyone needs X, so why should we have to pay for it?”
The answer is, because you are part of a community. Because our
nation is made up of more than just you. Because supporting our nation means
supporting those within our nation regardless of their gender, race, religion,
sexual orientation or annual income. Because contributing to the medical and
clinical health of individuals in the community contributes to the overall health
of the community.
And, in all honesty, because you’ll likely need most of those
services if you’re lucky to live long enough. If dollars are your motivator,
please remember a community of physically and mentally healthy individuals
contributes to a healthy economy. And then remember that reverse is also true.
Vaccinations, emergency room visits, blood tests when
something feels ‘off’, prescription medication do we really want to create a
society where these things are only available to those with greater financial means?
Do we really want entire communities of people going unvaccinated or going
without prenatal care? Even well-to-do isolationists will feel the
ramifications of that reality eventually.
I’ve seen a lot of nationalism over the past six months.
Unfortunately I’ve seen a lot of fake nationalism too. To be “pro-American” is
to be pro-American. And to be pro-American means you support Americans. Even if
they don’t look like, sound like, pray like, think like or make as much money
as you do.
Some individuals pay taxes for roads they may never drive. Some
individuals pay taxes for schools they never use. As individuals we fund the
infrastructure of this country - healthcare is infrastructure. An unhealthy
population is an unhealthy country. We can be much stronger together. But first
we have to stop being so damn selfish.
I’d like to suggest a non-partisan paradigm shift where individuals see
national healthcare as an investment: an investment in ourselves, in our
families and in our country.
* For those who may be unfamiliar with reconstructive surgery, I feel compelled to inform you, this is
not breast augmentation and this is not ‘pretty’ but this surgery allows me to
put on a shirt and feel ‘normal’ even without nipples, even with diagonal scars
across both sides of my chest.